People with Spina Bifida and Hydrocephalus call for the realization of the right to health

People with Spina Bifida and Hydrocephalus call for the realization of the right to health

The World Spina Bifida and Hydrocephalus Day’s third edition kicks- off with the theme “Access to Healthcare for all”. It reminds the public and policy makers that Spina Bifida and Hydrocephalus are a reality and increases awareness to improve the lives of people living with these conditions while celebrating many achievements made by our enthusiastic worldwide community.

Persons with Spina Bifida and/or Hydrocephalus and their parents need healthcare and social services to coordinate and cooperate with each other, in order to deliver appropriate, timely, adequate and efficient treatment and support. Services provided at an affordable and accessible multidisciplinary clinic are the best way to treat, support, and follow up a person with Spina Bifida and/or Hydrocephalus.

Health is a fundamental human right indispensable for the exercise of other human rights. The highest attainable standard of health is conducive to living an active life in dignity.

There are many social determinants of health, such as general socioeconomic, cultural and environmental conditions, living and working conditions, social and community influences, individual lifestyle factors, and age, gender and hereditary factors. The realization of the right to health therefore requires a multidisciplinary approach, from childhood into adulthood, and access to affordable, adequate, and appropriate services is imperative.
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The parent group APEBHI of Arequipa in Peru celebrated its 8th anniversaryEl grupo de padres de Arequipa (APEBHI) celebro su 8º aniversarioDe oudergroep APEBHI in Arequipa viert 8e verjaardag

El grupo de padres de Arequipa (APEBHI) celebro su 8º aniversario con una fiesta  en el nuevo hospital de Paz Holandesa. Fue el comienzo de un programa largo de del manejo de continencia en Paz Holandesa. IF asegurara que todo el material y conocimiento esté disponible. La APEBHI y Paz Holandesa organizaran una reunión mensual para monitorear el programa de soporte. El Presidente de IF, Pierre Mertens, felicito a la APEBHI con su excelente trabajo y resultados.De oudergroep APEBHI Arequipa in Peru vierde zijn 8ste verjaardag met een bijeenkomst en feestje in het nieuwe ziekenhuis van PAZ- Holandesa. Het was tevens de start  van het continentie programma in PAZ- Holandesa. IF (International Federation of Spina Bifida en Hydrocephalus) zal zorgen dat al nodig materiaal en de kennis beschikbaar zullen zijn. APEBHI en PAZ- Holandeza zullen een maandelijkse vergadering hebben om het steunprogramma te controleren. IF President Pierre Mertens feliciteerde APEBHI met hun uitstekende werk en bereikte resultaten.The parent group APEBHI of Arequipa in Peru celebrated its 8th anniversary with a party at the new Paz Holandesa hospital. It was the start of a large continence management programme at Paz Holandesa. IF will make sure that all needed material and knowledge will be available. APEBHI and Paz Holandeza will have a monthly meeting to monitor the support programme. IF President Pierre Mertens congratulated APEBHI with their excellent work and achievements.